This is the summize log from the twitter chat with Tali Berman, founder of Meir Autism Treatment Center in Israel that was held on April 28, 2009. Five copies of her book, Play to Grow! Over 200 games designed to help your special child develop fundamental social skills were given away during the twitter chat.
Welcome Tali - please tell us how you first learned of the Son-Rise program
I began with a family in 1997 and was amazed by the honoring approach and progress- child is fully integrated now
What are the 5 stages of development in The Son-Rise Program Developmental Model?
what age range do you cover in your teaching of sonrise?
do son-rise teachers work with therapists like OT and speech? is son-rise done at clinic or in home
5 stages are organized by skill level in 4 fundamental areas:eye contact, language, interactive attention span, flexibility
we work with children of all ages, including adults
can you share some of the games from the book?
Does sonrise target any specific behaviors? Can it help redirect behaviors?
yes, if child has specific need for those therapies. Typically done at home but games can be used in clinics as well
what does the Son-rise program maximum impact cover? How long was this? Do parents learn these programs too?
for sample game ideas see inside our book at our site www.meirautism.org- too little space here for more details
do you see many children with sensory challenges? is this covered in training?
can you explain the flexibility aspect as one of the stages? sonrise
Does sonrise target any specific behaviors? Can it help redirect behaviors?
book is more about teaching skills through interactive play than redirecting- though Son-Rise does address this
what are the 5 stages that are organized by skill level in 4 fundamental areas
do you attend IEP meetings and offer input to the goals?
how is sonrise different than floortime?
yes- the Israeli equivalent to IEP
does sonrise encourage siblings to be involved in playing and initiating games, etc?
what does a sonrise assessment consist of and how long does the therapy last?
play time is in specified room, repetitive play is joined not redirected and the parents attitude has big focus
only if sibling wants to participate if so than yes!
Do you guys offer any ideas on how to capture initial involvement in play?
Identifying where your child's skills are in 4 areas. Developmental model can be downloaded at www.son-rise.org
do you work on life skills, self-advocacy and/or social skills with adults
any tips on dealing with a child who seeks deep pressure often, my son wants on his chin
yes- this is key.playroom, fun props, your child's specific motivations during presentation and through out the game
yes- social skills, conversations skills, social cues, reading body language, asking personal q's, etc
Thank you! Was wondering about any play to help relax
Are the 5 stages of development considered sort of like a "trade secret" or are you allowed to share them?
give to him on ongoing basis- this can be used as leverage in game to keep him interested /willing to be challenged
Just too extensive to share in a sentence- stages are explained in full detail at www.son-rise.org, download check out
Have you found that your strategies help any child populations in addition to those on the spectrum?
A great 'hot dog ' game-try rolling him like a hot dog in a thin blanket- give squeezes and roll out- kids love it
Thank you! My son is very "hugged" inclined, we use to soothe a lot.
yes- any child with social and language challenges- many of our children are not on the spectrum
does therapy last more than one year? How do you know when to terminate - when move thru the 5 stages?
If the play time is in a specified room, what do you do with a child who consistently refuses to stay in the room?
there are dangers to rolling up in blanket, suffocation, need to be very careful with that
start with 15 minutes, build to more time, once the children see the fun they go in and shut door themselves
Specified room? Can we incorporate fresh outdoor play? And does it offer help with classroom transition or trans into adolescence
yes- of course with child's head out!
do you use sign language, comm devices or picture cards to communicate with nonverbal kids doing sonrise?
yes, plus too much pressure in chest area can suffocate a child..sounds like a great program tho, will def check out
In stages 4/5 games can be done outdoors, in earlier stages in the room. Son- Rise does address transition to school
Yes, but some kids strongly desire to run/move in larger area, really want to leave room, do you force to stay at 1st?
If appropriate for child- yes, still with focus on verbal lang
we do recommend closed/ locked door (if necessary)for initial transition into the room- again, most kids love being there
how long has this program been around?
I recommend mixing it up- 15-20 minutes in room, energetic outdoor activity then room again- building to more time
That makes total sense, but doesn't it kind of go against the Son-Rise principles?
Will program work with kids with Ds who are also on the spectrum?
I mean doesn't the closed/locked door sort of go against the basic Son-Rise principles?
One of few places we go against the child- once in the room they have total control- effective environment is crucial
Is there a specific room we should use for a playroom in the house that would work to our advantage? Dont have spare room here.
Interesting! What are some of the other ways you would go against the child's wishes?
If you don;t have spare room you can use child's bedroom- just need to modify it so it can be used effectively
If child was hurting himself, others or destroying property
how do sonrise teachers address biting and hitting during therapy?
In short (obviously a bigger discussion) being preventative, give alternative (chew toy to bite), praise when gentle
also offering deep pressure squeezes (if child lets) on head and rest of body- could be a way to release pressure
Does "being preventive" include changing gears when see behaviors coming, could communicate power through aggression?
changing gears just before the aggression, also tracking if there is link to foods, time of day, over stimulation, sleep
Thank you Bonnie for this chat. You are a force of nature! I hope all you winners out there get a lot from the book
So if change gears right before aggression, might still be pre-aggression behaviors, but you honor as communication?
Looking forward to new ideas and less frustration, thank u again
Thank you for sharing your time and talents!
You can check out @playtogrow book on #sonrise program at: http://meirautism.org/principles
Showing posts with label twitter. Show all posts
Showing posts with label twitter. Show all posts
Sunday, May 3, 2009
Tuesday, April 21, 2009
Twiter Notes From Autism Webinar on Multi-Treatments
I belong to the Spectrum Gold Club through www.momsfightingautism.com at the cost of $14.95 per month via paypal. Through the club I get advanced notice of the free webinars, that are moderated by author Chantal Sicile-Kira and transcripts from the webinars at a later date.
This webinar took place on Monday April 20, 2009 with Jonathan Alderson in Canada as the guest. He specializes in merging best-practice strategies and techniques into cohesive customizes Multi-Treatment Interventions. His website is Intensive Multi-Treatment Intervention.
The following are the tweets I posted on my twitter page that I was able to gather. My son was in the kitchen at the same time so it was hard to get all the information.
After the introduction Jonathan gave some background information on himself. He went on to mention the principles for choosing a treatment plan.
1st principle to choose treatment program is to start with idea that dx of autism is multifaceted and multi factorial, not just 1 modality
physical health of child needs to be a priority
child has bowel issues, distended stomach, diet intervention working in conjunction with medical Drs within 2-4 months kid did play therapy
principle # 3 each indiv treatment/strategy (slp, ot, music) chosen & brought into an indication that are pre conditioned and timing
try behavior or swimming with other programs you are doing, ask W questions to therapists - what is this specifically for?
be wary if they say the product helps everything, which symptoms does it address and doesn't address, when (HBOT) is best time/age?
don't start HBOT first, do other Biomedical treatments first, this one company turned parents away, principle - which area does it work on
multi treatment does not mean doing them all at the same time or at once, review program that is happening already, might be able eliminate
service providers need to talk to one another, tell a parent if the treatment is not the right one, maybe try this one first
where do all the treatments fit in the map, now taking questions that were sent in, first from Puerto Rico asking about RDI and floortime
both programs fit under a play based model plus social and maybe even use pieces of both to address social dev and social communication
can start with play therapy and move on to behavioral therapy, might have better eye contact spontaneously,now structured adult led learning
son is 6 & does not speak, speech therapy is useless, what can I do. He says consider physical help, high # of kids have chronic ear infect
it is possible that certain sounds they are sensitive too, only one example, not for all nonverbal children, a health concern related?
go beyond hearing tests, speech therapy is low frequency & he says not enough, make sure the SLPs are teaching parents techniques to do home
parent needs to be included or switch therapists with someone who includes you the parent,also make language and talking a game rather than
an exercise that is controlled, be playful with words, mom pours juice, next time sing orange song in a playful way, make language engaging
the child may tug on parent to let them know they want song to sing again, also Chantal says might be motor problem, they need alternative
means of communication, many scared that they will not learn to speak if have a device to communicate, this is not true, will help speech
the focus could than be on the inappropriate behaviors instead of teaching to communicate, don't isolate out language, look at bigger picture
question now on stimming 4 yr old with classic autism likes air conditioners and fans, some say stop them from self stimulating, he is not
investigate - maybe biochemical - beta carotene someone named Mary M published papers on - peripheral vision, hand clapping
Dr in NY Kaplan specializes in vision a therapy not the colored ones but this is lenses that are designed to help depth perception
I typed biochemical, mistake he said bio medical both times
I just submitted a question about my sons vocal tics - burping and then asked about brushing protocol
other callers said the other kid could have yeast over growth
learn how to ask questions if the therapist cannot answer maybe find another one his website is www.imti.ca
next question about B12 shots, he is not a med Dr - personal opinion says there is good research on the B12 shot comparing to creams/spray
he has started four DAN conferences, last one in San Diego, he started long time ago, in Washington, NJ he was invited to Physician training
what does he think of the gfcf diet - what to do and when, specifically to eliminate the proteins in wheat and milk, families in conj w/Dr
a peptide test will tell them if the child needs those eliminated, determine if child needs it or not, dont jump in, others say just try it
at least close to a yr to get results, cannot determine in a few months, make sure full range of nutrition they are getting, SDC appropriate
gfcf does not address a yeast issue where SDC is, Chantal gets responses on trying the gfcf diet for a few months, at least 8 months
gfcf does not address a yeast issue where SDC is, Chantal gets responses on trying the gfcf diet for a few months, at least 8 months
autism can be co morbid with other disorders, can have aspergers and depression
In this brief presentation he will share his insights into how to effectively combine treatments
paying specific attention to phases of development, the order and timing of treatments.
GRASP is good advocacy program, 50% of the board are on the spectrum, also cognitive therapy is good to learn from #asd #autism
Brenda Smith Myles book and Chantal 's book on life skills are both recommended, she touted her own book, but it is good I have it
a teen with aspergers needs to have fun social experiences need a balance not only interact with just therapists #aspergers #asd
Chantal talking about her son who is 20 and he wants to have more friends and a girl friend, he is practicing at various locales, beach
next question about natural healing - oil of oregano, he runs a program with families following DAN protocol
dont do protocols under your own direction, find someone with state certification need right dose, etc.
they have not asked my question, this one is 12 yr old boy with PDD-NOS, tested for mercury levels, he has high levels,
now on vaccine schedule he said the Mom should go to a DAN conference, now about chelation - he has worked with kids with IV chelation
kids had other therapies so not scientific studies to see if was specific to chelation when memory improved
can adults benefit with auditory and music therapy, what about HBOT for adults, maybe higher functioning, they need to be participating
include the adults in the decision process for their own therapies, caregivers supporting the person, helpers believe help is possible, be +
auditory therapy - analyze what can help for them her son Jeremy has written a lot down and is publishing it,. he started vision therapy 19
the treatment map evolves with each new strength, clear up one issue like hyperactivity use play therapy first, by third phase better
isolate on other distractions to get their language
in the first instance make trial in ABA make more varied, opposite of how ABA is applied, a bit of reconstruction of ABA model,
don't prescribe the interactions, in a strict ABA each therapist is strict to give same verbal inst, he allows therapists to instruct dif way
kids can function in this way, all with autism dont need instruction the same way, change up where therapists sits or change their tone
Chantal says generalization to start with changing one thing at a time, good at ABA change tone but not stimuli, keep same tone & then chng
use puppets to practice scripts, play around and testing boundaries
get a session of therapy recorded and try to implement it, not an extra burden for parent to become therapist, use strategies at home
treatment effect speeds up as consistency across the environment and teach other therapists to do it too, ABA and speech, etc connect
a conduit for generalizing therapists, next question from CAIRO asking about homeschooling and HBOT for autistic infant at 2 yrs old
HBOT are used throughout North America in hospitals, for an infant need to speak to a Dr, not going to do an opinion
lets list what are your financial resources, family support, time, professional, do an inventory to see if comfortable to do homeschool
socializing is to be placed with other children and adults, research child can benefit from socializing in peer groups and play,
low eye contact, close to no language, more intensive adult led program best to begin with
toileting methods with severely autistic children, his method is - consider biomedical, autism correlated with gut issues, if kid has gut
seal up the gut issues of constip, diar, etc before trying toileting, kid could be in pain, no tug of war or effort until gut is resolved
if child is fairly regular, make toilet/washroom a place where the child has control - not an area to forced to sit on toilet -user friendly
keep consistent - associate bathroom with diaper changes 99% of time get them into the bathroom and do it beside toilet, yoga mat to use
keep all the supplies stocked in the bathroom, diapers, wipes, step one, two is how you respond & react with facial expressions, attitude
parents in gest and fun and the parents make comments about the diaper, the msg child gets that this is something they are not happy about
the presentation is to take off diaper, look at child even if not looking back, and voice is calm, enthusiastic, you did a ---- this is good
give the message that he did the pppp and the attitude is really important, empty contents into the toilet, make association - visual behav
pretend if not able to get into toilet and verbalize, once they are wiped, clothes on and they get to flush, he encourages use tp so kid
can see the process of taking the toilet paper off the roll and putting in toilet, than use the wipes to clean them up better,no force flush
empower the child to take control of their own body, encourage rather than force
child might not be ready due to hypotonia, an accessory is a foot stool for child to have feet flat and supported, can relax muscles
some books say take kids once an hr, he says no get more blanks and false negatives, no person on the planet goes once an hour
kids have a hard time feeling their body, this girl sets an alarm to remind herself to go to bathroom every few hrs when out in public
adults have told Chantal that they cannot tell the difference between a full stomach and having to go to the bathroom, timer helps them
if your child holds bowel movements until they come home - theory is that school overwhelmed they are more comfortable at home, so can go
some children with sensory issues modify bathroom with a rug - could have auditory challenges, bathrooms are super echoy & the flush
if a kid talks softly, covers ears often than use the rug and do not have them flush, paent can flush for them, tiles and seats cold, warmup
best way to find therapists in your area - he says parents ahead of you are beating the path, dont recreate the wheel with research
save parents hours of finding stuff, local support groups, list at ARI of DAN Dr's, the list is for Canada and other countries, TACA
TACA has real time chat now, local ASA chapters (I always say this)
they never did my question about brushing protocol
interview the professional - open to work with team members, do not engage in contract with someone not willing to engage with others
are they personable to you, your the child's advocate, how do they respond to you, parent friendly therapist
This webinar took place on Monday April 20, 2009 with Jonathan Alderson in Canada as the guest. He specializes in merging best-practice strategies and techniques into cohesive customizes Multi-Treatment Interventions. His website is Intensive Multi-Treatment Intervention.
The following are the tweets I posted on my twitter page that I was able to gather. My son was in the kitchen at the same time so it was hard to get all the information.
After the introduction Jonathan gave some background information on himself. He went on to mention the principles for choosing a treatment plan.
1st principle to choose treatment program is to start with idea that dx of autism is multifaceted and multi factorial, not just 1 modality
physical health of child needs to be a priority
child has bowel issues, distended stomach, diet intervention working in conjunction with medical Drs within 2-4 months kid did play therapy
principle # 3 each indiv treatment/strategy (slp, ot, music) chosen & brought into an indication that are pre conditioned and timing
try behavior or swimming with other programs you are doing, ask W questions to therapists - what is this specifically for?
be wary if they say the product helps everything, which symptoms does it address and doesn't address, when (HBOT) is best time/age?
don't start HBOT first, do other Biomedical treatments first, this one company turned parents away, principle - which area does it work on
multi treatment does not mean doing them all at the same time or at once, review program that is happening already, might be able eliminate
service providers need to talk to one another, tell a parent if the treatment is not the right one, maybe try this one first
where do all the treatments fit in the map, now taking questions that were sent in, first from Puerto Rico asking about RDI and floortime
both programs fit under a play based model plus social and maybe even use pieces of both to address social dev and social communication
can start with play therapy and move on to behavioral therapy, might have better eye contact spontaneously,now structured adult led learning
son is 6 & does not speak, speech therapy is useless, what can I do. He says consider physical help, high # of kids have chronic ear infect
it is possible that certain sounds they are sensitive too, only one example, not for all nonverbal children, a health concern related?
go beyond hearing tests, speech therapy is low frequency & he says not enough, make sure the SLPs are teaching parents techniques to do home
parent needs to be included or switch therapists with someone who includes you the parent,also make language and talking a game rather than
an exercise that is controlled, be playful with words, mom pours juice, next time sing orange song in a playful way, make language engaging
the child may tug on parent to let them know they want song to sing again, also Chantal says might be motor problem, they need alternative
means of communication, many scared that they will not learn to speak if have a device to communicate, this is not true, will help speech
the focus could than be on the inappropriate behaviors instead of teaching to communicate, don't isolate out language, look at bigger picture
question now on stimming 4 yr old with classic autism likes air conditioners and fans, some say stop them from self stimulating, he is not
investigate - maybe biochemical - beta carotene someone named Mary M published papers on - peripheral vision, hand clapping
Dr in NY Kaplan specializes in vision a therapy not the colored ones but this is lenses that are designed to help depth perception
I typed biochemical, mistake he said bio medical both times
I just submitted a question about my sons vocal tics - burping and then asked about brushing protocol
other callers said the other kid could have yeast over growth
learn how to ask questions if the therapist cannot answer maybe find another one his website is www.imti.ca
next question about B12 shots, he is not a med Dr - personal opinion says there is good research on the B12 shot comparing to creams/spray
he has started four DAN conferences, last one in San Diego, he started long time ago, in Washington, NJ he was invited to Physician training
what does he think of the gfcf diet - what to do and when, specifically to eliminate the proteins in wheat and milk, families in conj w/Dr
a peptide test will tell them if the child needs those eliminated, determine if child needs it or not, dont jump in, others say just try it
at least close to a yr to get results, cannot determine in a few months, make sure full range of nutrition they are getting, SDC appropriate
gfcf does not address a yeast issue where SDC is, Chantal gets responses on trying the gfcf diet for a few months, at least 8 months
gfcf does not address a yeast issue where SDC is, Chantal gets responses on trying the gfcf diet for a few months, at least 8 months
autism can be co morbid with other disorders, can have aspergers and depression
In this brief presentation he will share his insights into how to effectively combine treatments
paying specific attention to phases of development, the order and timing of treatments.
GRASP is good advocacy program, 50% of the board are on the spectrum, also cognitive therapy is good to learn from #asd #autism
Brenda Smith Myles book and Chantal 's book on life skills are both recommended, she touted her own book, but it is good I have it
a teen with aspergers needs to have fun social experiences need a balance not only interact with just therapists #aspergers #asd
Chantal talking about her son who is 20 and he wants to have more friends and a girl friend, he is practicing at various locales, beach
next question about natural healing - oil of oregano, he runs a program with families following DAN protocol
dont do protocols under your own direction, find someone with state certification need right dose, etc.
they have not asked my question, this one is 12 yr old boy with PDD-NOS, tested for mercury levels, he has high levels,
now on vaccine schedule he said the Mom should go to a DAN conference, now about chelation - he has worked with kids with IV chelation
kids had other therapies so not scientific studies to see if was specific to chelation when memory improved
can adults benefit with auditory and music therapy, what about HBOT for adults, maybe higher functioning, they need to be participating
include the adults in the decision process for their own therapies, caregivers supporting the person, helpers believe help is possible, be +
auditory therapy - analyze what can help for them her son Jeremy has written a lot down and is publishing it,. he started vision therapy 19
the treatment map evolves with each new strength, clear up one issue like hyperactivity use play therapy first, by third phase better
isolate on other distractions to get their language
in the first instance make trial in ABA make more varied, opposite of how ABA is applied, a bit of reconstruction of ABA model,
don't prescribe the interactions, in a strict ABA each therapist is strict to give same verbal inst, he allows therapists to instruct dif way
kids can function in this way, all with autism dont need instruction the same way, change up where therapists sits or change their tone
Chantal says generalization to start with changing one thing at a time, good at ABA change tone but not stimuli, keep same tone & then chng
use puppets to practice scripts, play around and testing boundaries
get a session of therapy recorded and try to implement it, not an extra burden for parent to become therapist, use strategies at home
treatment effect speeds up as consistency across the environment and teach other therapists to do it too, ABA and speech, etc connect
a conduit for generalizing therapists, next question from CAIRO asking about homeschooling and HBOT for autistic infant at 2 yrs old
HBOT are used throughout North America in hospitals, for an infant need to speak to a Dr, not going to do an opinion
lets list what are your financial resources, family support, time, professional, do an inventory to see if comfortable to do homeschool
socializing is to be placed with other children and adults, research child can benefit from socializing in peer groups and play,
low eye contact, close to no language, more intensive adult led program best to begin with
toileting methods with severely autistic children, his method is - consider biomedical, autism correlated with gut issues, if kid has gut
seal up the gut issues of constip, diar, etc before trying toileting, kid could be in pain, no tug of war or effort until gut is resolved
if child is fairly regular, make toilet/washroom a place where the child has control - not an area to forced to sit on toilet -user friendly
keep consistent - associate bathroom with diaper changes 99% of time get them into the bathroom and do it beside toilet, yoga mat to use
keep all the supplies stocked in the bathroom, diapers, wipes, step one, two is how you respond & react with facial expressions, attitude
parents in gest and fun and the parents make comments about the diaper, the msg child gets that this is something they are not happy about
the presentation is to take off diaper, look at child even if not looking back, and voice is calm, enthusiastic, you did a ---- this is good
give the message that he did the pppp and the attitude is really important, empty contents into the toilet, make association - visual behav
pretend if not able to get into toilet and verbalize, once they are wiped, clothes on and they get to flush, he encourages use tp so kid
can see the process of taking the toilet paper off the roll and putting in toilet, than use the wipes to clean them up better,no force flush
empower the child to take control of their own body, encourage rather than force
child might not be ready due to hypotonia, an accessory is a foot stool for child to have feet flat and supported, can relax muscles
some books say take kids once an hr, he says no get more blanks and false negatives, no person on the planet goes once an hour
kids have a hard time feeling their body, this girl sets an alarm to remind herself to go to bathroom every few hrs when out in public
adults have told Chantal that they cannot tell the difference between a full stomach and having to go to the bathroom, timer helps them
if your child holds bowel movements until they come home - theory is that school overwhelmed they are more comfortable at home, so can go
some children with sensory issues modify bathroom with a rug - could have auditory challenges, bathrooms are super echoy & the flush
if a kid talks softly, covers ears often than use the rug and do not have them flush, paent can flush for them, tiles and seats cold, warmup
best way to find therapists in your area - he says parents ahead of you are beating the path, dont recreate the wheel with research
save parents hours of finding stuff, local support groups, list at ARI of DAN Dr's, the list is for Canada and other countries, TACA
TACA has real time chat now, local ASA chapters (I always say this)
they never did my question about brushing protocol
interview the professional - open to work with team members, do not engage in contract with someone not willing to engage with others
are they personable to you, your the child's advocate, how do they respond to you, parent friendly therapist
Saturday, April 18, 2009
Henry Ford Health System Autism Conference
Henry Ford Center for Autism and Developmental Disabilities (CADD) held the Living With Autism Workshop on Thursday, April 16th in Troy, Michigan. The workshop was tweeted in real time on twitter. Some of the information was retweeted later by Henry Ford News.
Due to the time difference as I am in California I was not able to follow along. I was given permission to post the tweets from the workshop, so these are the ones I collected. This lists the breakout sessions.
Check out live updates of our autism workshop Thursday, 8:30 a.m. here on Twitter. More info about the workshop: http://tiny.cc/eaj23
Tweeted by @metroparent and @henryfordnews
Hi Everyone. The Living with Autism Workshop in Troy will start in a half-hour or so. I'll be tweeting live here today, so stay tuned
Just talked to Amy Sanderson of EMU's autism center. Her 6-year-old son Owen has autism. Nice lady
We're putting together an advisory board for Special Edition, our special needs publication. Amy may be a great candidate
Our keynote speaker today is Eustacia Cutler, her daughter is Temple Grandin, the renowned animal behavior expert and best-selling author
Ruth Robbins, Metro Parent's associate publisher, is giving opening remarks.
Full crowd. Jill Robinson of Madonna University is talking now. Small university with a big heart, she says.
Their graduate program in autism is a great program for educators.
Madonna University faculty is teaching some of the breakout sessions today. "We're here to share our knowledge," she said.
Dr. Charles Barone of Henry Ford Health System is making remarks now. They're real pioneers on autism care and have a new center.
At Henry Ford, we're committed to helping children with autism and their families," he says. Talks about the autism clinic.
Offers comprehensive plan for patients with autism. Something that's music to the ears of parents with kids with autism.
Pediatricians feel frustrated at times. We don't have a silver bullet to treat autism," Barone said.
That's why the professionals at Henry Ford offer comprehensive treatment. It's not one treatment fits all kids, he said.
I'm at the Establishing Verbal Skills for Children with Autism, presented by Kaufman Children's Center's Nancy Kaufman
Deals with childhood apraxia of speech (problems with talking), which affects around 40 percent of kids with autism
Some kids can produce oral movements, but may not be able to produce oral motor movements
There are "pop-out" words sometimes, though. The child says cookie all of a sudden when he sees one, but may not be able to talk on request
Some kids have "marble mouth" communication, where words are garbled.
Kids who can't understand spoken language will memorize key words to get by, kind of like a person trying to speak a foreign language
Two-tong approach to help: teach how to talk physically and teach them how to understand language.
Methods to help kids get ready for vocal imitation...
Use sign language as a bridge. Have a child make a sign for general words like more, done, want. Leaves too much guess work of child's wants
Kaufman's teaches more specific signs for each child. Avenue to communication. Pair with vocals later.
Kaufman protocol is a behavioral shaping approach
kids can struggle pronouncing consonants. They help kids get close to that consonant as a bridge to the real sound.
test kids to figure out what vowels, consonants and combinations a child can produce
Work with kids on the syllable combinations that are hard for them
All the while working with child to improve vocalization
Kids still sign words too. They don't let go of sign until they have mastered pronunciation of that word.
Don't deal with strings of words until kids have mastered words that they use most
Some words are easier to say, kids should practice those for oral motor skills strengthening
Kids with autism tend to cut off last part of word, which can be really important to be understood
After a while, introduce pivot words that are used in combination with a couple other words. "Move the door." "On the desk."
If kids thumps on door to communicate he wants to go out
...don't just open the door, ask "Do you want to go out? Tell me you want to go out
Many children learn from memorization, so it's important to say things in a way that they would sound natural repeating it....
Say "I want a cookie." instead of "Do you want a cookie?" for instance
Parent asks: "Can all children learn how to speak?" Good question
Answer: At least all children should be able to achieve "functional communication."
Important to create a "willing and cooperative learner" for success
Pairing is critical, creating a connection with educator
For good communication, a child must learn to make requests, which are called mands. Very difficult.
Tact is a label for something. Cookie. Door. Chair. Spoon
echoic is vocal imitation
These and more are some of the classifications of language
Signs are important, but always should be paired with vocal approximations
If child requests something (huge in communication), it's important that you give them what they want. Reinforcement!
Now in ABA and TEACCH: Merging Methods in the Classroom, presented by Hilary Hitchcock of Madonna University.
TEACCH stands for Treatment and Education of Autistic and Communications-Handicapped Children
First of importance is having a physical space for learning
Next is creating a daily schedule (pictures or words) to help understand sequence of events in day.
Then Work system. What work needs to be done? How do we know when it's done. What happens then?
Having visuals for students clarify the communication process
Pictures of choices for free time paired with words helps kids absorb information.
visually structured tasks is another key to teaching autistic children. Gives kids help in taking next steps
Written instructions important, too, even for those who can't read. Helps them get familiar with words
Visual organization of items needed for a task in one container helps limit child's focus and keep his attention.
Limit the materials, too, so not to overwhelm
ABA, or Applied Behavior Approach, is often used. Includes individualized programming for each individual student.
Prompts are an important part of ABA. Pointing to a stop sign. Picking child up when you want him to stand up.
You can prompt verbally, with gestures, physically or environmentally (placing a cup in front of child to prompt milk request.
Schedules are important to kids with autism. Helps them expect and reach appropriately to what comes next in day.
Remember: visual cues are important. Show a bus and write the word for getting off the bus to school
visual schedule for going to the bathroom is a great example. Pull pants down. bathroom duty (wait one minute), etc. wash hands
visual schedule for washing hands, too. wet hands, get soap, rinse, dry
Great for helping kids with independent work, too. Put items in order of need for the task you want child to complete
Put items in top to bottom, left to right order to prepare or cement reading pattern. (cool tip)
Timers can give kids cue that certain part of schedule is over and time to move on to new task on schedule
Rewards, of course, helps kids keep motivated to stay on task
For older kids, give them coins they can use to trade for a cookie or treat over time. Helps them learn lesson in money, too.
Colors really help kids key into important concepts and cues
Label different classrooms with numbers and colors, so they can navigate better. "I have second session in the pink room," he can think.
Simple changes and deviations can help create a system unique to each child
Some kids respond to colors, others pictures, others numbers. Still, always include words
create work stations by using colored duct tape to differentiate each area
Have portable cards with pictorial instructions to take when kid is out and about, at gym or somewhere else.
The primary lessons: organization is key. Variety in prompts (color, words, pictures) are too.
Due to the time difference as I am in California I was not able to follow along. I was given permission to post the tweets from the workshop, so these are the ones I collected. This lists the breakout sessions.
Check out live updates of our autism workshop Thursday, 8:30 a.m. here on Twitter. More info about the workshop: http://tiny.cc/eaj23
Tweeted by @metroparent and @henryfordnews
Hi Everyone. The Living with Autism Workshop in Troy will start in a half-hour or so. I'll be tweeting live here today, so stay tuned
Just talked to Amy Sanderson of EMU's autism center. Her 6-year-old son Owen has autism. Nice lady
We're putting together an advisory board for Special Edition, our special needs publication. Amy may be a great candidate
Our keynote speaker today is Eustacia Cutler, her daughter is Temple Grandin, the renowned animal behavior expert and best-selling author
Ruth Robbins, Metro Parent's associate publisher, is giving opening remarks.
Full crowd. Jill Robinson of Madonna University is talking now. Small university with a big heart, she says.
Their graduate program in autism is a great program for educators.
Madonna University faculty is teaching some of the breakout sessions today. "We're here to share our knowledge," she said.
Dr. Charles Barone of Henry Ford Health System is making remarks now. They're real pioneers on autism care and have a new center.
At Henry Ford, we're committed to helping children with autism and their families," he says. Talks about the autism clinic.
Offers comprehensive plan for patients with autism. Something that's music to the ears of parents with kids with autism.
Pediatricians feel frustrated at times. We don't have a silver bullet to treat autism," Barone said.
That's why the professionals at Henry Ford offer comprehensive treatment. It's not one treatment fits all kids, he said.
I'm at the Establishing Verbal Skills for Children with Autism, presented by Kaufman Children's Center's Nancy Kaufman
Deals with childhood apraxia of speech (problems with talking), which affects around 40 percent of kids with autism
Some kids can produce oral movements, but may not be able to produce oral motor movements
There are "pop-out" words sometimes, though. The child says cookie all of a sudden when he sees one, but may not be able to talk on request
Some kids have "marble mouth" communication, where words are garbled.
Kids who can't understand spoken language will memorize key words to get by, kind of like a person trying to speak a foreign language
Two-tong approach to help: teach how to talk physically and teach them how to understand language.
Methods to help kids get ready for vocal imitation...
Use sign language as a bridge. Have a child make a sign for general words like more, done, want. Leaves too much guess work of child's wants
Kaufman's teaches more specific signs for each child. Avenue to communication. Pair with vocals later.
Kaufman protocol is a behavioral shaping approach
kids can struggle pronouncing consonants. They help kids get close to that consonant as a bridge to the real sound.
test kids to figure out what vowels, consonants and combinations a child can produce
Work with kids on the syllable combinations that are hard for them
All the while working with child to improve vocalization
Kids still sign words too. They don't let go of sign until they have mastered pronunciation of that word.
Don't deal with strings of words until kids have mastered words that they use most
Some words are easier to say, kids should practice those for oral motor skills strengthening
Kids with autism tend to cut off last part of word, which can be really important to be understood
After a while, introduce pivot words that are used in combination with a couple other words. "Move the door." "On the desk."
If kids thumps on door to communicate he wants to go out
...don't just open the door, ask "Do you want to go out? Tell me you want to go out
Many children learn from memorization, so it's important to say things in a way that they would sound natural repeating it....
Say "I want a cookie." instead of "Do you want a cookie?" for instance
Parent asks: "Can all children learn how to speak?" Good question
Answer: At least all children should be able to achieve "functional communication."
Important to create a "willing and cooperative learner" for success
Pairing is critical, creating a connection with educator
For good communication, a child must learn to make requests, which are called mands. Very difficult.
Tact is a label for something. Cookie. Door. Chair. Spoon
echoic is vocal imitation
These and more are some of the classifications of language
Signs are important, but always should be paired with vocal approximations
If child requests something (huge in communication), it's important that you give them what they want. Reinforcement!
Now in ABA and TEACCH: Merging Methods in the Classroom, presented by Hilary Hitchcock of Madonna University.
TEACCH stands for Treatment and Education of Autistic and Communications-Handicapped Children
First of importance is having a physical space for learning
Next is creating a daily schedule (pictures or words) to help understand sequence of events in day.
Then Work system. What work needs to be done? How do we know when it's done. What happens then?
Having visuals for students clarify the communication process
Pictures of choices for free time paired with words helps kids absorb information.
visually structured tasks is another key to teaching autistic children. Gives kids help in taking next steps
Written instructions important, too, even for those who can't read. Helps them get familiar with words
Visual organization of items needed for a task in one container helps limit child's focus and keep his attention.
Limit the materials, too, so not to overwhelm
ABA, or Applied Behavior Approach, is often used. Includes individualized programming for each individual student.
Prompts are an important part of ABA. Pointing to a stop sign. Picking child up when you want him to stand up.
You can prompt verbally, with gestures, physically or environmentally (placing a cup in front of child to prompt milk request.
Schedules are important to kids with autism. Helps them expect and reach appropriately to what comes next in day.
Remember: visual cues are important. Show a bus and write the word for getting off the bus to school
visual schedule for going to the bathroom is a great example. Pull pants down. bathroom duty (wait one minute), etc. wash hands
visual schedule for washing hands, too. wet hands, get soap, rinse, dry
Great for helping kids with independent work, too. Put items in order of need for the task you want child to complete
Put items in top to bottom, left to right order to prepare or cement reading pattern. (cool tip)
Timers can give kids cue that certain part of schedule is over and time to move on to new task on schedule
Rewards, of course, helps kids keep motivated to stay on task
For older kids, give them coins they can use to trade for a cookie or treat over time. Helps them learn lesson in money, too.
Colors really help kids key into important concepts and cues
Label different classrooms with numbers and colors, so they can navigate better. "I have second session in the pink room," he can think.
Simple changes and deviations can help create a system unique to each child
Some kids respond to colors, others pictures, others numbers. Still, always include words
create work stations by using colored duct tape to differentiate each area
Have portable cards with pictorial instructions to take when kid is out and about, at gym or somewhere else.
The primary lessons: organization is key. Variety in prompts (color, words, pictures) are too.
Labels:
autism conference,
henry ford news,
twitter
Friday, April 17, 2009
Join the RDI Twitter Chat with Steve Gutstein

Please join me as I host an "author chat" on twitter Friday, April 24th at 2:00 PM Central Time, 3PM Eastern time, which happens to be Noon for me on the west coast. The guest will be Dr. Steven Gutstein, the founder of The Relationship Development Intervention Program, also known as RDI.
RDI® is a program for educating and coaching parents and teachers of children with Autism Spectrum Disorders (ASD) and others who interact and work with the child. It is a 'mission oriented' program. This means that it is not wedded to any specific techniques.
The mission of RDI® is to develop the most effective methods to remediate those specific deficits which impede people on the autism spectrum from productive employment, independent living, marriage and intimate social relationships.
Dr. Gutstein will be discussing his latest release, The RDI Book: Forging New Pathways for Autism, Asperger's and PDD with the Relationship Development Intervention Program.
The hashtag to be utilized for the author chat is #RDI. There are various twitter applications that you can use. I prefer www.summize.com where you would just type in #RDI and follow along in real time and click reply to respons to a particular post.
When I attend twitter events I keep a window open to the host and another one for the guest and then one for summize. When you hit reply in summize it opens a new window in twitter with the @ sign ready to respond to that twitter member. You might want to close window when it has finished posting. You will also need to make room in your tweet for the #RDI hashtag.
There is also www.tweetchat.com where you would sign in using your twitter ID and password and when it asks what room to enter you would type in #RDI. I have tried it a few times. You do not have to keep typing in the hashtag if you use tweetchat.
Another option is to utilize www.tweetdeck.com. I went there once and got lost so never tried to figure it out. There are many twitter members that use this if you seek guidance. I would test it out now with other twitter gatherings that take place on a weekly basis like Monday nights it is #journchat and Tuesday evenings it is #gno (girls night out).
I suggest trying these out if you are new to twitter to see how real time chat events work and how they flow, etc. When you RSVP below in Mr Linky you will be using your twitter ID, not a website as this is a twitter chat and going to your website is not going to help another twitter member follow you at the chat.
Feel free to post relevant questions in the comments. Follow Dr Gutstein on twitter. Find me on twitter . Read a sample chapter of The RDI Book.
This chat will last for one hour on Friday, April 24th 2PM CST, 3PM EST & Noon for PST. A copy of The RDI Book will be given away during the chat.
Sunday, March 29, 2009
Kay's Naturals Protein GFCF Cereal for Gluten Free Twitter Party

One case of protein cereals that are gluten and casein free is a prize at the gluten free twitter party on Friday, April 3, 2009. A case consists of six 9.5 ounce boxes with the winner choosing from:



The nutritional information is found at www.kaysglutenfree.com More information on the gluten free twitter party with resources. This prize/giveaway will be done at the 9AM PST time slot with panel members.
Labels:
casein free,
cereals,
gluten free,
kays naturals,
prizes,
twitter
Friday, February 27, 2009
Listing of Games from Twitter Party
There was a party on twitter Friday, Feb 27, 2009. The topic was board games with #timetoplay the hashtag. This was a sitewarming party for Time To Play Mag. "TimetoPlay is a site about family entertainment/toys"
Many twitter members were sharing their favorite games and I wanted to keep track of those being tweeted so I have compiled a list of them. I will begin first with the ones I posted on:
1. Kerplunk
2. Battleship
3. Connect Four
4. Uno
5. Checkers
6. Topple It
7. Air Hockey table game
8. Leap Frog Memory Mate
9. Leap Frog Spell & Match
10. Lego Bionicle
11. K'nex
12. Parcheesi
13. Pegboards
14. Operation
15. Chinese Checkers
Now the list of games that was tweeted on:
Banagrams is a word tile like Scrabble
The great thing about Banangrams is that since each person has own grid, 6+ can play.and you can handicap for kids #timetoplay
Sequence by Jax is a great learning game
Rummikub is coming out, FINALLY, with a Jr version
PERFECTION has the weird shapes and timer
Wild Planet, who makes Hyperdash, makes a version for younger kids called Animal Scramble
Best part of Stratego..placing the bombs
Card Games from GAMEWRIGHT, they have the best card games for kids 6+
Loot
Battling Tops
Wig Out
Hottest toy this Spring: Skimboard Surfer. Boogie Board for the backyard
Sidewalk Crayons washes away just like chalk
Best Game EVER that didnt make it: Shout!
Guess Who
Scene It
Wait to you see the new Candy Land, in which you build your own path
Masterpiece
the new Chicken Limbo is called Giraffalaff - similar game, new character, lots of fun
they added two new characters to Candy Land this year - the game is celebrating 60 years
Hungry Hungry Hippo
Wack a Mole
Canasta
Hasbro's coming out with a new Game of Life based on extreme reality - should be fun
Twister Hopscotch
Chutes and Ladders
Uno Flash
Uncle Wiggly Game
Apples to Apples Jr
Guillotine card game
PayDay
Old Maid
Caterpillar Color Race by Discovery Toys
Spoons
Barrel of Monkeys
Hi Ho Cherry
Rummy Royal
Bingo
Hullabaloo
Scattergories
Pictionary
Mouse Trap
Blokus
Battle of the Sexes
39 Clues best for 8-12 somewhere around that age
Cranium
Clipo
Rushhour
Monopoly
Tic Tac Toe
Pic Up Sticks
Simon Says
Qwitch is a card game w/ numbers & letters, you each get 1/2 the deck and the here are + - & = cards, it's fast moving & fun
another GREAT game for the little crowd that gets them moving is Hyper Dash or Hyper Jump
Clue
Sorry
Scrabble
Yahtzee
Bop-It
Go For broke
Scrutineyes
Many twitter members were sharing their favorite games and I wanted to keep track of those being tweeted so I have compiled a list of them. I will begin first with the ones I posted on:
1. Kerplunk
2. Battleship
3. Connect Four
4. Uno
5. Checkers
6. Topple It
7. Air Hockey table game
8. Leap Frog Memory Mate
9. Leap Frog Spell & Match
10. Lego Bionicle
11. K'nex
12. Parcheesi
13. Pegboards
14. Operation
15. Chinese Checkers
Now the list of games that was tweeted on:
Banagrams is a word tile like Scrabble
The great thing about Banangrams is that since each person has own grid, 6+ can play.and you can handicap for kids #timetoplay
Sequence by Jax is a great learning game
Rummikub is coming out, FINALLY, with a Jr version
PERFECTION has the weird shapes and timer
Wild Planet, who makes Hyperdash, makes a version for younger kids called Animal Scramble
Best part of Stratego..placing the bombs
Card Games from GAMEWRIGHT, they have the best card games for kids 6+
Loot
Battling Tops
Wig Out
Hottest toy this Spring: Skimboard Surfer. Boogie Board for the backyard
Sidewalk Crayons washes away just like chalk
Best Game EVER that didnt make it: Shout!
Guess Who
Scene It
Wait to you see the new Candy Land, in which you build your own path
Masterpiece
the new Chicken Limbo is called Giraffalaff - similar game, new character, lots of fun
they added two new characters to Candy Land this year - the game is celebrating 60 years
Hungry Hungry Hippo
Wack a Mole
Canasta
Hasbro's coming out with a new Game of Life based on extreme reality - should be fun
Twister Hopscotch
Chutes and Ladders
Uno Flash
Uncle Wiggly Game
Apples to Apples Jr
Guillotine card game
PayDay
Old Maid
Caterpillar Color Race by Discovery Toys
Spoons
Barrel of Monkeys
Hi Ho Cherry
Rummy Royal
Bingo
Hullabaloo
Scattergories
Pictionary
Mouse Trap
Blokus
Battle of the Sexes
39 Clues best for 8-12 somewhere around that age
Cranium
Clipo
Rushhour
Monopoly
Tic Tac Toe
Pic Up Sticks
Simon Says
Qwitch is a card game w/ numbers & letters, you each get 1/2 the deck and the here are + - & = cards, it's fast moving & fun
another GREAT game for the little crowd that gets them moving is Hyper Dash or Hyper Jump
Clue
Sorry
Scrabble
Yahtzee
Bop-It
Go For broke
Scrutineyes
Labels:
autism,
board games,
party,
time to play,
twitter
Saturday, November 29, 2008
Calling for Twitter Members to help a Family out this Holiday Season
This request is for another Special Needs Mom on Twitter. Her daughter Janelle is six years old and has a rare form of Epilepsy called Lennox Gastaut Syndrome. The Mom, Kelly was diagnosed on Thanksgiving Day with a form of Leukemia.
I would like to bring a gas card for her husband to have to help with the expense of traveling to visit Kelly. I want to get a gift card or gift certificates from some websites for presents for her kids Jack and Janelle. I live fairly close to a Toys R Us and can get one to bring to Kelly so she could order items online for her kids. I think a grocery store card would be a welcomed gift also.
She was transferred from Orange County to UCLA in West Los Angeles where she will be for one month. She is hopeful to return home by Christmas. I live in Los Angeles near Downtown. I spoke to Kelly on the phone this evening and will be visiting her later next week.
Anyone who contributes please let me know your twitter ID so I can add it to the card to Kelly. This is the Holiday Season, please consider helping the family out by donating any amount possible so that some gift cards can be delivered. Thank you for reading this and wanting to help out a fellow twitter member.
Picture of the family.
I would like to bring a gas card for her husband to have to help with the expense of traveling to visit Kelly. I want to get a gift card or gift certificates from some websites for presents for her kids Jack and Janelle. I live fairly close to a Toys R Us and can get one to bring to Kelly so she could order items online for her kids. I think a grocery store card would be a welcomed gift also.
She was transferred from Orange County to UCLA in West Los Angeles where she will be for one month. She is hopeful to return home by Christmas. I live in Los Angeles near Downtown. I spoke to Kelly on the phone this evening and will be visiting her later next week.
Anyone who contributes please let me know your twitter ID so I can add it to the card to Kelly. This is the Holiday Season, please consider helping the family out by donating any amount possible so that some gift cards can be delivered. Thank you for reading this and wanting to help out a fellow twitter member.
Picture of the family.
Labels:
donations,
epilepsy,
gas card,
gift card,
grocery store card,
holiday season,
leukemia,
paypal,
twitter,
UCLA
Friday, August 29, 2008
Twitter Tag
I practically start each day checking out Twitter and end the night or early morning hours by refreshing the page one more time as I pass the computer on my way to bed. So when I came across this twitter tag at Swept Away where I was dropping an Entrecard and seeing twitter caught my eye.
{start copy here}
Rules:
+ Answer all the questions.
+ Add your twitter username to the list and leave a comment on this post so I can add you on the master list.
+ Tag other twitter users you know.
1. Who invited you to join twitter? Lisa Shea
2. How many twitter updates have you made since you signed up? 2,835
3. How many direct messages have you received so far? 220
4. On an average, how many twits do you make a day? 20+
5. How many followers do you have? 461
6. How many are you following? 437
7. Have you ever blocked/denied follow requests? yes, spammers and one recently
8. What did you write in your one line bio? writing on autism and advocating for children to be treated with respect from general public
9. Did you even bother to customize your twitter page? Nope, not interested
10. Do you think twitter is cool or is just a waste of time? cool and neat
Twitters: cherryrose | maileen1| autismfamily | Your Twitter Username
{end copy here}
{start copy here}
Rules:
+ Answer all the questions.
+ Add your twitter username to the list and leave a comment on this post so I can add you on the master list.
+ Tag other twitter users you know.
1. Who invited you to join twitter? Lisa Shea
2. How many twitter updates have you made since you signed up? 2,835
3. How many direct messages have you received so far? 220
4. On an average, how many twits do you make a day? 20+
5. How many followers do you have? 461
6. How many are you following? 437
7. Have you ever blocked/denied follow requests? yes, spammers and one recently
8. What did you write in your one line bio? writing on autism and advocating for children to be treated with respect from general public
9. Did you even bother to customize your twitter page? Nope, not interested
10. Do you think twitter is cool or is just a waste of time? cool and neat
Twitters: cherryrose | maileen1| autismfamily | Your Twitter Username
{end copy here}
Labels:
autismfamily,
BellaOnline,
profile,
tag,
twitter,
updates,
username
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